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Though the behavioral modifications helped immensely, Latifses ended up having to approve of a Nissen fundoplication surgery for both of them. During this surgery, the top part of the stomach is used to form a cuff around the esophagus that closes off the esophagus whenever the stomach contracts, which prevents the acid reflux.
It is important to note that very few infants have to have this procedure. "Most children with GERD do not need surgery, nor do they have this severe form of the disorder," says Latifses. "Following surgery, both recovered and went about the business of being little boys. They are doing wonderfully now."
Latifses says parents who may feel their child has a similar problem need to listen to their instincts and have it checked out. "The doctor may see your child for 10 to 15 minutes, but you spend 24 hours a day with him or her," she says. "Keep a symptom diary for your child. Ask lots of questions and don't be afraid to ask the doctor to explain something again if you don't understand. Don't hesitate to stand up and tell your doctor a treatment or medicine isn't working or that you don't agree with him or her. After all, you are the best advocate for your child."
Thank you for the article and the responses. My daughter has the same problem and when she throws up, it goes up her nose as well. Anyone with the same problem?
Thank You, this article helped me tremendously, it discribes exactly what happens to my infant son when I breastfeed him. The doctor prescribed Axid, but I want to try the behavioral maneuvers rather than medication. I am hoping this will work.
Wow. Thank you so much for finding this article and I am so happy it helped! I hope your grandaughter has stabilized and is well and enjoying being a baby! It does get so much better. My oldest son is outgrowing his surgery (sometimes age corrections are needed, or not) as he is very tall! He is back on meds and is symptomatic, but nothing like he or his brother were as babies.
I can recommend the Pediatric and Adolescent Gerd foundation. Pager.org I think. I volunteered for them quite a while and still keep in touch!
This article really hit home for me and my daughter. My granddaughter had a similar episode at the age of 14 days. She stopped breathing and did the arching of the back, eyes in the back of her head, etc. We rushed her to the ER and then were transported to a NICU for several days. She too had all the test and the pH probe. She is home now and on Reglan and Pepcid and we are do to follow up with a GI specialist this week. These episodes are scary and we still went to the ER with one the other night. Thanks for the insight and information! It feels great to know that this will get better.
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