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Fibular Hemimelia

Diagnosis, Treatment and Support

By Jacqueline Bodnar

Pages:  1  2  3  

They opted for the latter and, after doing a lot of research, boarded a plane to Baltimore to take their daughter to the International Center for Limb Lengthening at Sinai Hospital, where Dr. Dror Paley would perform the surgery. After they complete this procedure, she will need another operation, somewhere around the age of 10.

Limitations and Options

"Some children have an almost unnoticeable deformity, with only mild hypoplasia of the fibula," Dr. Iobst says. "These children may not even know they have the condition and live perfectly normal lives. Others may have such significant deformity that amputation is the best treatment option. Most children are positioned somewhere between these two extremes, and will require surgical management of their limb-length discrepancy and any associated deformity."

He explains that surgical treatments depend on the child's abnormality. However, the most common surgeries include limb lengthening and correction.

Getting Support
One of the most important things is to get support and try to speak with other parents who are going through the same situation. One simple way you can do this is by joining online discussion groups like the fibular hemimelia group at Yahoo (requires free registration). Another option is to contact the Hememilia Support Group.

"Parents need to find a support group," Schroeder says. "It's an immeasurable help to talk to other parents."


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