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Celiac Disease
Understanding This Autoimmune Disorder
By Lisa A. Goldstein
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Because the disease is hereditary, family members of people who have been diagnosed should be tested for the disease, Dr. Green says. "About 10 percent of an affected person's first-degree relatives (parents, siblings, children) will also have the disease," he says. "The longer a person goes undiagnosed and untreated, the greater the chance of developing malnutrition and other complications." Untreated people can incur a higher risk of additional autoimmune disorders, neurological problems, osteoporosis and even cancer.
One issue for people who have celiac is cross-contamination. This is when gluten-free food comes into contact with food containing gluten – even in very small amounts. "If you put peanut butter on a piece of bread and then get more peanut butter, inevitably a few crumbs drop in the jar," Bast says. "Those crumbs could cause someone with celiac to get sick when they use the same jar." A young child's life has many food-related events: school parties, friends' birthdays, eating in the school cafeteria, eating out or ordering takeout, Bast says. "Besides the details of how to cook, [you must] buy and bring GF food for all of these occasions," she says. "The emotional aspect for a child is difficult."
A diagnosis can be overwhelming, but attitude sets the tone for how a child will handle his disease and diet. The philosophy recommended by experts is echoed by Jamie Yadgaroff of Penn Valley, Pa., whose son was diagnosed at age 3. "I try to make being gluten free a positive and special thing for my child, not a burden or a negative," she says. "I did not make my entire household gluten free because I felt that my son needed to learn that his diet is different. I didn't want to create a fantasy world at home. However, I created a few shelves in my pantry that he could reach that contain all gluten-free foods."
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